Tag Archives: Muscular Dystrophy

Julian’s Story

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Last May 2013 Julian was diagnosed with a type of limb girdle muscular dystrophy called Sarcoglycan deficiency. Although it has led to a lot of difficulties, Julian is keeping a positive attitude. Yet, one of those difficulties was in his own home. He and his mom were living in a townhome and Julian could no longer make it up and down the stairs.

The time had come for them to move and his mom became full of anxiety at the cost of an unexpected move. When The Kindness Wave team became aware of their need they sprang into action. The team began to help in the search for just the right home and a check was given to the new landlord to make it possible for them to move into their new lake home. Kind acts make a difference, just ask Julian and his mom!